Integrating psychosocial oncology advocacy priorities as reported by cancer-related organizations: Insights from a cross-Canada online survey

In collaboration with the Canadian Association of Psychosocial Oncology (CAPO), this project sought to better understand the advocacy priorities and challenges of Canadian organizations involved in psychosocial oncology (PSO). The goal was to gather insights that could inform the potential future co-development of a shared national PSO advocacy strategy. A 27-item survey was distributed to 54 organizations, with 30 responding. Findings highlighted common priorities—including improving access to equitable, timely, and tailored PSO support—as well as significant challenges, such as limited resources and reliance on donations. While many organizations reported having advocacy committees, few had dedicated advocacy budgets. Shared goals included raising awareness, fostering partnerships, and advocating for increased funding, while differences emerged around cancer-specific advocacy, complementary therapies, and workplace reintegration.

We are now working to make the survey responses even more comprehensive by re-engaging with the organizations that did not initially respond, in an effort to gather broader input. This additional outreach will help ensure that future efforts to co-build a national advocacy agenda are as inclusive and representative as possible.

For more information about this study, please contact:

Samar Attieh or Andreea Constantinescu

Loiselle-research@mcgill.ca

Funded by:

The Christine and Herschel Victor/Hope & Cope Psychosocial Oncology Research Chair